1. Mission and goals

The Cerebral Palsy Research Registry is a multi-institutional collaborative effort whose primary mission is to improve our understanding of cerebral palsy.

We believe that by working together, families and researchers can make a difference in the lives of people affected by cerebral palsy. Our primary mission is to maintain a secure database of basic information that will allow us to connect interested families with researchers studying cerebral palsy.

In addition, we can use the use the Cerebral Palsy Research Registry (CPRR) as a tool to investigate surveillance data. Examples of this include the natural aging process of persons with cerebral palsy, current interventions, environmental modifications and services utilized by persons with cerebral palsy.

Initially enrolling children and adults with cerebral palsy in the Chicagoland area, the CPRR has been expanded to accommodate national participant registration as well as collaboration with multiple institutions across the country.